Useful links

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Useful links

Here are a few links we hope you will find useful. We are not responsible for the content of any of these sites.

Health information

We do not provide medical advice. If you would like more information about a condition or would like to talk to someone about your health, contact NHS Choices or speak to your GP.

Net Doctor
Information on prevention, treatment and management of diseases and conditions.
NHS Choices
Information for people to make choices about their health.
Patient UK
Medical information for doctors and patients.
Self help UK
Directory of self-help organisations, patient support groups and charities in the UK that provide support, guidance and advice to patients, carers and their relatives.
Sense about Science
Sense about Science is a charitable trust that equips people to make sense of scientific and medical claims in public discussion.

Organisations we’re working with

Action for A-T
A charity funding medical research to speed up the process of identifying a cure for Ataxia Telangiectasia (A-T) or treatments that delay or prevent the disabling effects of this devastating childhood condition. Action Medical Research and Action for A-T will be joining forces to co-fund up to £500,000 of research in 2018 to tackle the rare degenerative condition, Ataxia Telangiectasia.
A medical research charity working to identify and prevent premature birth.
Action Medical Research will be working with Borne, to fund up to £500,000 a year of new research from 2017-19, identified through our peer review system, to prevent death and disability in babies and children as a result of pregnancy complications and premature birth.
British Paediatric Neurology Association (BPNA)
A registered charity and the professional organisation for doctors who specialise in the care of children with neurological disorders.
Action Medical research is working with the BPNA to co-fund a Research Training Fellowship award in the field of childhood neurological diseases, including muscle disease.
Cystic Fibrosis Trust
UK cystic fibrosis charity.
Action Medical Research and the Cystic Fibrosis Trust are together funding a study into cystic fibrosis.
Chartered Society of Physiotherapy Charitable Trust
Charity supporting the advancement of physiotherapy education and research.
Action Medical Research has teamed up with the Chartered Society of Physiotherapy Charitable Trust to support research into paediatric non-acquired brain injury and paediatric cerebral palsy and is jointly funding a project to help young people with cerebral palsy.
Action Medical Research will be joining forces to fund research to help children with brain damage or other mental or physical disability at birth.
Cure Kids New Zealand
New Zealand charity funding children’s research.
Action Medical Research, Sands and New Zealand charity Cure Kids are together funding a study into stillbirth.
Great Ormond Street Hospital Children’s Charity
Charity for Great Ormond Street Hospital.
Action Medical Research has teamed up with Great Ormond Street Hospital Children’s Charity to fund project grants from across the UK, awarded in July 2015.
Publicly funded medical research organisation.
Action Medical Research and the MRC are together funding a Clinical Research Training Fellowship.
MS Society
Charity for people affected by multiple sclerosis (MS).
Action Medical Research and the MS Society together funded study which examined the early symptoms of MS in children.
Myotubular Trust
A charity working to change the lives of the children and families who are affected by the rare genetic muscle condition, Myotubular Myopathy.
Action Medical Research is teaming up with the Myotubular Trust to fund a UK based project grant in 2018 for translational research into myotubular myopathy.
Stillbirth and neonatal death charity.
Action Medical Research, Sands and New Zealand charity Cure Kids are together funding a study into stillbirth.
We are also teaming up with Sands to fund a Research Training Fellowship in 2018 into the prevention of stillbirth. 
The Brain Tumour Charity
Charity for people affected by brain tumours.
Action Medical Research and the Brain Tumour Charity are together funding a study to identify the best treatment for children with brain cancer.
The Neuroblastoma Society
Charity funding vital research into neuroblastoma.
Action Medical Research and Neuroblastoma UK are together funding a study into neuroblastoma.

Other useful organisations

A membership organisation of the leading medical and health research charities in the UK.
Ataxia UK
Ataxia UK is a charity working across the UK supporting people affected by ataxia.
Autistica is the UK's leading autism medical research charity – committed to funding groundbreaking research that will transform lives.
The Batten Disease Family Association (BDFA) is a national charity which aims to support families, raise awareness and facilitate research into the group of devastating neurodegenerative diseases commonly known as Batten disease.
Bliss exists to ensure that all babies born too soon, too small or too sick in the UK have the best possible chance of survival and of reaching their full potential.
CMT United Kingdom
Working to support those who are affected by Charcot-Marie-Tooth Disease.
Epilepsy Society
The UK's leading epilepsy medical charity working for everyone affected by epilepsy.
Genetic Alliance UK
A national charity (an alliance of over 180 patient organisations) working to improve the lives of patients and families affected by all types of genetic conditions.
Ichthyosis support group
The Ichthyosis Support Group (ISG) is a network of parents, sufferers and medics.
Meningitis Research Foundation
The Meningitis Research Foundation funds research to prevent meningitis and septicaemia, and to improve survival rates and outcomes. The Foundation promotes education and awareness to reduce death and disability, and gives support to people affected.
Meningitis Now (formerly the Meningitis Trust)
The Meningitis Trust improves the lives of people affected by meningitis and provides professional meningitis support and aftercare services in the UK.
Microtia UK
Microtia UK is a charity working with families whose children have microtia.
The NIHR MCRN encourage children and families to work with researcher professionals and clinicians and get actively involved in the different stages of research and associated activities.
Our Saving Grace
The group organises teams of befrienders to help families who have lost one or both of their twins to twin to twin transfusion syndrome (TTTS).
Perthes Association
The Perthes Association is a national charity helping families of children suffering from Perthes diseases and associated conditions.
Tuberous Sclerosis Association
The Tuberous Sclerosis Association provides support to families affected by TS across the UK.