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Research we fund
We are funding projects at leading hospitals, universities and specialist centres across the UK.
Family stories
Hear from the brave families who've generously shared their experiences of living with the conditions and diseases our vital research projects are fighting to prevent.
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Volunteers are the heart of everything we do. Your support in key roles can make a big impact, find out how you can get involved.
Latest news
Vote for ‘Emmy’s Story' in the Smiley Charity Film Awards
Action's moving film ‘Emmy’s Story’ has been nominated in the prestigious Smiley Charity Film Awards.
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Latest research funded
Together, with charity partner LifeArc, we’re funding nearly £1m of urgently-needed new research to help children affected by rare diseases. This work will give hope to children and families facing some of the toughest fights.
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