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Organisations we work with

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Organisations we work with

Action works with other organisations where this helps move forward important medical research for children.

Our gold standard peer review process is highly regarded and other charities often join us to fund research recommended by Action’s expert Scientific Advisory Panel.

We are working with LifeArc to fund new research from across the UK into children’s rare diseases, including research projects to improve gene therapy to treat Hunter syndrome;  investigate new drug treatments for childhood leukaemia;  improve diagnosis and monitoring of hypertrophic cardiomyopathy; develop a new drug treatment for pyridoxine-dependent epilepsy ; develop a new gene therapy for babies born with a rare severe lung condition ; developing a new treatment for high-risk brain cancer in children ; and develop cutting-edge gene therapy for severe childhood epilepsy. We are now working with LifeArc to fund further translational research projects in 2023 and 2024 to help children with rare diseases.   

We are working in partnership with Borne to tackle premature birth including funding research together to reduce the risk of preterm birth ;  reduce the risk of preterm birth following cancer treatment ; and understand how labour starts to uncover new ways to prevent spontaneous preterm birth .

We teamed up with the Chartered Society of Physiotherapy Charitable Trust and are jointly funding research into improving movement through brain stimulation.

We’re funding research with The Addenbrooke's Charitable Trust to improve the treatment of children with traumatic brain injury (TBI).

We’re working with DEBRA UK to fund together research searching for a new drug treatment for children with a rare debilitating skin condition.

We are working with the British Paediatric Neurology Association (BPNA) to co-fund Research Training Fellowships in childhood neurological conditions including a Fellow who started in 2021 and  a Fellow who started in 2022.

We are working with Rosetrees Trust to co-fund a Research Training Fellowship in improving the safety and effectiveness of a new treatment for peanut allergy.

We teamed up with Great Ormond Street Hospital Children’s Charity and jointly funded 13 project grants from across the UK. We’ve also worked with Neuroblastoma UK to fund a project to help children's immune systems to fight cancer and with the Cystic Fibrosis Trust including to fund five projects including research to protect children from life-changing infections and to develop a new type of gene therapy.

We worked with Cure Kids and Sands to fund research to help prevent stillbirth, with SMA UK to fund research into a potential new treatment for spinal muscular atrophy and with The Brain Tumour Charity to fund research into brain cancer treatments for children.

We funded research together with Newcastle Upon Tyne Hospitals NHS Charity and the Great North Children’s Hospital Foundation into language comprehension in children with cerebral palsy and severe movement problems.

We worked with the Scottish Government Chief Scientist Office (CSO) to fund research in Scotland including  projects to help prevent or treat serious lung infections; understand the genes involved in developmental language disorder; understand vision in children born to mothers taking methadone in pregnancy; and help children who were born with cleft palate to speak clearly.

We, the Niemann-Pick Research Foundation and Niemann-Pick UK together funded a study, together with NPSuisse and Niemann-Pick de Fuenlabrada to test a new drug treatment into Niemann-Pick disease type C.

We previously funded a four year project developing a new, computerised way of interpreting MRI scans of babies’ brains together with the Engineering and Physical Sciences Research Council. We worked with the MRC to fund a Clinical Research Training Fellow. We funded the first major UK scientific study into multiple sclerosis (MS) in children together with the MS Society.