Organisations we work with

Action works with other organisations where this helps move forward important medical research for children.

Our gold standard peer review process is highly regarded and other charities often join us to fund research recommended by Action’s expert Scientific Advisory Panel.

We are working with LifeArc to fund new research from across the UK into children’s rare diseases, including research projects to improve gene therapy to treat Hunter syndrome;  investigate new drug treatments for childhood leukaemia; search for a new drug treatment for Duchenne muscular dystrophy; improve diagnosis and monitoring of hypertrophic cardiomyopathy; and develop a new drug treatment for pyridoxine-dependent epilepsy. We are now working with LifeArc to fund further translational research in 2022 to help children with rare diseases.   

We are working with Borne to fund research to help develop a test to identify women at risk of giving birth early,  to reduce the risk of preterm birth, and to reduce the risk of preterm birth following cancer treatment.

We teamed up with the Chartered Society of Physiotherapy Charitable Trust and are jointly funding a project to help young people with cerebral palsy and research into improving movement through brain stimulation.

We are working with SMA UK to fund research into a potential new treatment for spinal muscular atrophy. We’re also funding research into language comprehension in children with cerebral palsy and severe movement problems together with Newcastle Upon Tyne Hospitals NHS Charity and the Great North Children’s Hospital Foundation.

We are working with the British Paediatric Neurology Association (BPNA) to co-fund Research Training Fellowships in the field of childhood neurological conditions. As well as a Fellow who started in 2021, we are working together to identify a new Fellowship to start in 2022.

We have been working with the Scottish Government Chief Scientist Office (CSO) including to fund research in Scotland including a project to help prevent or treat serious lung infections.

We teamed up with Great Ormond Street Hospital Children’s Charity and jointly funded 13 project grants from across the UK. We’ve also worked with Neuroblastoma UK to fund a project to help children's immune systems to fight cancer and with the Cystic Fibrosis Trust including to fund five projects including research to protect children from life-changing infections and to develop a new type of gene therapy.

We, the Niemann-Pick Research Foundation and Niemann-Pick UK together funded a study, together with NPSuisse and Niemann-Pick de Fuenlabrada to test a new drug treatment into Niemann-Pick disease type C.

We previously funded a four year project developing a new, computerised way of interpreting MRI scans of babies’ brains together with the Engineering and Physical Sciences Research Council. We worked with the MRC to fund a Clinical Research Training Fellow. We funded the first major UK scientific study into multiple sclerosis (MS) in children together with the MS Society.