Organisations we work with

Action works with other organisations where this helps move forward important medical research for children.

Our gold standard peer review process is highly regarded and other charities often join us to fund research recommended by Action’s expert Scientific Advisory Panel.

We teamed up with Great Ormond Street Hospital Children’s Charity and have jointly funded 13 project grants from across the UK.

We are also currently working with The Brain Tumour Charity, to fund a study to identify the best treatment for children with brain cancer

We are working with Neuroblastoma UK to fund a project to help children's immune systems to fight cancer and the Cystic Fibrosis Trust to fund a study into cystic fibrosis and chest infections and one to protect children from life-changing infections and another to develop a new type of gene therapy.

We have teamed up with the Chartered Society of Physiotherapy Charitable Trust and are jointly funding a project to help young people with cerebral palsy

We, the Niemann-Pick Research Foundation and Niemann-Pick UK are funding a study, together with NPSuisse and Niemann-Pick de Fuenlabrada to test a new drug treatment into Niemann-Pick disease type C.

We are also working with the British Paediatric Neurology Association (BPNA) to co-fund a Research Training Fellowship award in the field of childhood neurological diseases, including muscle disease.

We are working with Borne, to fund research to help develop a test to identify women at risk of giving birth early and to help prevent brain injury in premature babies. 

We have teamed up with LifeArc to co-fund up to £1m of translational research projects from across the UK in 2019 focused on children’s rare diseases.

We are also working with the Scottish Government Chief Scientist Office (CSO) to jointly fund three projects - one to help prevent or treat serious lung infections, another on vision in children born to mothers taking methadone in pregnancy and a third to understand more about the genes involved in developmental language disorder to improve diagnosis and treatment.

We previously funded a four year project developing a new, computerised way of interpreting MRI scans of babies’ brains together with the Engineering and Physical Sciences Research Council and worked with the MRC to jointly fund a Clinical Research Training Fellow.