HELP RESEARCH CONTINUE
When your child has an illness with no cure, a medical breakthrough can be your only hope.
“There is no treatment and no cure, this is a fatal childhood disease.” To hear these words is unimaginable, but for Lily’s parents this was the devastating reality.
In the UK right now there are thousands of families like Lily’s, caring for a child with a rare and devastating disease for which there is no cure.
Surprisingly, medical research tackling childhood diseases and conditions is poorly funded in the UK. Action Medical Research has a critical job to do in helping fill this gap to protect children.
We’ve been funding life-changing research to help sick babies and children since 1952 – searching for answers that have led to cures, treatments and medical breakthroughs, saving countless lives.
Research gives hope to families facing some of the toughest experiences life can deal you. And while these families wait for medical breakthroughs, vulnerable children are especially threatened by the current pandemic.
Our income is suffering because of Covid-19, putting research at risk. But right now, medical research has never been needed more. For children like Lily, research is the only hope. We cannot stop searching for cures.
Lily has a rare and fatal neurological disease called BPAN. This disease strikes young children, causing them to develop slowly. It leads to seizures, muscle problems, symptoms of Parkinson’s, dementia and eventually early death.
Lily won’t survive this, but one day the legacy is that someone might have a cure and that can only happen through Action Medical Research and the work that they’re doing.
Right now, medical breakthroughs have never been needed more. We cannot stop.