DON’T LET RESEARCH STOP
“This disease will try and take away abilities that Matilda has, but we won’t just sit back and let it happen. We need to fight against it. We need to try and find a treatment and a cure."
- Georgina, mum of Matilda
When your child receives a devastating diagnosis, a medical breakthrough can become your only hope. We fund research into rare conditions and incurable childhood diseases, but Covid-19 has hit our income hard. Please help.
In the UK right now there are thousands of families, caring for a child with a rare and devastating disease for which there is no cure.
We’ve been funding life-changing research to help sick babies and children since 1952 – searching for answers that have led to cures, treatments and medical breakthroughs, saving countless lives.
Research gives hope to families facing some of the toughest experiences life can deal you. And while these families wait for medical breakthroughs, vulnerable children are especially threatened by the current pandemic.
Our income is suffering because of Covid-19, putting research at risk. But right now, medical research has never been needed more. For families like Matilda's, research can be the only hope. We cannot stop searching for cures.
Matilda was just five years old when she was diagnosed with Niemann-Pick type C (NPC). It was heartbreaking news for her parents. To know that they'd have to watch this disease progressively rob their amazing little girl of the simplest of tasks like walking, swallowing and talking.
Helping her to understand this condition has been heartbreaking. She knows that things will get worse, that it will try and take away abilities that she has, but we won’t just sit back and let it happen. We are determined to fight Niemann-Pick C.
Right now, medical breakthroughs have never been needed more. We cannot stop.