Money Raised to Date
For more up to date figures, please visit Rohan's new page!
Total raised online: £10,057.90
Total raised offline: £2,033.48
Total raised: £12,091.38
Gift aid: £2,219.15
Raised as of: June 2019
About Rohan
Rohan was born on Tuesday 10th December 2003. He was born 6 weeks prematurely and weighed 3lb15.5oz.
He did well and had little issues until he started school and we started to notice his lethergy, he was referred the paediatricians and started having tests. Finally in March 2013 he was diagnosed with a rare Mitochondrial condition called MELAS. This stands for Myopathy, encephalopathy, lactic acidosis and stroke like episodes.
Rohan had most of these conditions and was managing them and still attending school as a normal little boy until October 2013 when he was dealt the hardest blow of his first stroke like episode. Following this he had an EVD and brain surgery to release the pressure and he fought hard to recover. Rohan was always a fighter and did incredibly well to recover his mobility, and speech, he lost his sight in December 2013 and then he was knocked again by another stroke like episode at Christmas 2013. Again Rohan fought back and at Easter 2013 he went back to school. He loved being back in school with his friends and every day asked whether it was school and had a beaming smile when he could go in.
He never complained about any of his complications or losing his sight. In May 2014 he was the star of mine and his step dads wedding dancing during the speechs and getting a standing ovation.
In September 2014, he suffered another set back and strokes and finally lost his fight on Saturday 4th October 2014, aged 10 years old. He was comfortable and with both his mum and dad.
We feel his loss every day, his sister Yazmin misses him every day. As a caring, loving little boy he is a massive loss to this world. We feel that raising money in any way we can would be what Rohan would want us to do and this would hopefully go towards finding a cure for some of these terrible illnesses and conditions.
Rohan's Supporters
Agata Barkowska Martins - £95.00
SEASIDE 10k 24/09/2017
Clare Spurway - £4,892.40
London Landmarks Half Marathon and Virgin London Marathon 2018 22/04/2018
Clare and David take on the Two Castles - £985.00
Two Castles 10k 11/06/2017
and now the Santa Dash - £250.00
Colour Rush Warwick 5k 25/09/2016
MUDDY FOR ROHAN - £750.00
Tough Mudder Midlands 22/05/2016
Pippa Bellis - £2,384.74
Pippa's Cycling Challenge for Action Medical Research 08/05/2016
|
Amount |
Name |
Date |
Message |
| £50 |
Alison and Neil Spurway |
31/05/2019 | In memory of a very special boy |
|
£10.00 |
Jeremy Pratt |
08/04/2019 |
|
|
£10.00 |
Petko |
04/10/2018 |
You are an amazing person, Ash and I am sure your son would’ve been an amazing person too. Thank you for everything! |
|
£10.00 |
L V |
03/10/2018 |
|
|
£40.00 |
Val Stubbins |
06/09/2018 |
For sale of cards - thank you Margaret and Joyce |
|
£10.00 |
Pippa Bellis |
23/02/2018 |
|
|
£10.00 |
Andrea |
22/02/2018 |
Great work x |
|
£171.00 |
Party Parlour |
09/01/2018 |
A donation raised from Santa's Grotto in Colchester xx |
|
£11.00 |
Sharon |
30/12/2017 |
For the Lovely Xmas Decorations & Gifts |
|
£20.00 |
Lucy Wilson |
10/10/2017 |
For superheroes everywhere - keep fighting, keep smiling xx |
|
£20.00 |
Anonymous |
04/10/2017 |
|
|
£25.00 |
Dayle carvell |
03/10/2017 |
Sent with all my love for an amazing thing your doing xxx |
|
£5.00 |
Nikki and Byron |
25/07/2017 |
|
|
£10.00 |
Sharons Mum & Billy |
17/03/2017 |
For Rohan xx |
|
£20.00 |
Helen Jewell |
17/03/2017 |
|
|
£10.00 |
Emma Holder |
17/03/2017 |
In loving memory. xx |
|
£15.00 |
Anonymous |
21/08/2016 |
|
|
£15.00 |
Anonymous |
29/07/2016 |
|
|
£15.00 |
The M-Ps |
01/07/2016 |
For a special boy who is loved and missed everyday...will wear our paddington badges for you Rohan xxx |
|
£108.00 |
Paddington Badges |
01/07/2016 |
|
|
£10.00 |
Karen |
03/06/2016 |
|
|
£25.00 |
Alana and Derek |
06/12/2015 |
We are friend's of Rohan's Aunty Clare and Uncle David and we know through them what a very special little boy Rohan was. Our thoughts are with you all xxx |
|
£5.00 |
Claire Wildman |
05/12/2015 |
What a wonderful thing to do in memory of your amazing son! |
|
£50.00 |
Pete Maycroft |
04/12/2015 |
A lovely young man, very much loved and missed by his family. Thoughts and prayers are with you all |
|
£5.00 |
Andrew Jackson |
04/12/2015 |
|
|
£10.00 |
Anonymous |
01/12/2015 |
|
|
£10.00 |
Paul Smith |
09/10/2015 |
|
|
£20.00 |
Helen Vickers |
04/10/2015 |
Thinking with pride of Rohan, and with love of his family and friends today. Shine on Rohan, the brightest star in the sky. |
|
£20.00 |
Deborah, Toby, Archie and Angel Saul |
04/10/2015 |
We are thinking of you all today and remembering Rohan x |
|
£10.00 |
Anonymous |
02/10/2015 |
|
|
£10.00 |
Claire King |
02/10/2015 |
Sorry I couldn't be at your event, glad you had such lovely sunshine. I'm sure someone we know had a hand in that! Much love, xXxX |
|
£50.00 |
Carolynne,Paul & Alex |
02/10/2015 |
|
|
£10.00 |
Jen Mayou |
02/10/2015 |
|
|
£5.00 |
Janet Gilchrist |
30/09/2015 |
I have lots of lovely memories of Rohan playing at toddler groups and he always had an infectious giggle and a smile. X |
|
£25.00 |
Hazel Gee |
29/09/2015 |
I remember a cheeky giggle and sense of fun in spite of all. |
|
£50.00 |
Joan Bowen |
19/08/2015 |
My husband sadly passed away from this horrible illness last April, the 2nd 2014, aged 68 after a 5 year fight against this very little known condition. So much so that when he first went into hospital the doctors had to Google it!! More needs to be known about MELAS, I know what you went through with Rohan during the final few weeks/months of his life so you have my heartfelt sympathy and condolences and I hope that my contribution to his fund will help in some way. |
|
£10.00 |
Kevin Crowley |
10/08/2015 |
|
|
£25.00 |
Anonymous |
03/08/2015 |
|
|
£100.00 |
Nationwide Produce ( Claire & Maddison Clarke ) |
30/07/2015 |
My daughter Maddison was in the same year as Rohan, we hope this will help find a cure xxx |
|
£10.00 |
Natalie Hatfield |
30/07/2015 |
I looked after Rohan at his nursery, amazing boy! Your doing him proud! Xxx |
|
£10.00 |
Anonymous |
29/07/2015 |
|
|
£20.00 |
Gaynor Johnson-Dunn |
29/07/2015 |
I miss him so much, calling into my classroom each day to say hello, our cuddles and giggles and sharing of news. He was my little star. |
|
£10.00 |
Sarah Amos |
29/07/2015 |
I used to coach Rohan at the YMCA gym club in southport, he was a bundle of joy and energy to be around. Such a great cause and let's hope a cure is found xx |
|
£5.00 |
Emma Dandy |
28/07/2015 |
Xx |
|
£5.00 |
dayle Carvell |
28/07/2015 |
sorry it couldn't be anymore it's a brilliant cause xx |
|
£20.00 |
Poon Family |
28/07/2015 |
X |
|
£20.00 |
Katy Bowers |
28/07/2015 |
Rohan was an amazing boy. His smile lit up our classroom and brought so much joy to his classmates and all of the staff in school. I will always remember Rohan and I think of him every day. Good luck with the fund raising and tribute page x |
|
£10.00 |
Mia Hall |
28/07/2015 |
I was in the same year as Rohan. Hope they to find a cure. Xxx |
|
£10.00 |
Michelle Couton |
28/07/2015 |
I knew Rohan from when I use to do parent helper and he was a polite boy so sad he lost he life at such a young age.xx |
|
£10.00 |
Hajra Mulla |
22/07/2015 |
|
|
£30.00 |
Troy Preston |
22/07/2015 |
I could feel your pain as reading your e-mail about Rohan, such a big loss and what a brave boy. |
|
£20.00 |
Anonymous |
22/07/2015 |
|
|
£10.00 |
Cydric Desbarida |
21/07/2015 |
|
|
£5.00 |
Brian Hamilton |
21/07/2015 |
|
|
£10.00 |
Anonymous |
21/07/2015 |
|
|
£10.00 |
Roy Burden |
21/07/2015 |
Such a short life. But he would be very proud to know what you are doing. |
|
£10.00 |
John ingledew |
21/07/2015 |
|
|
£25.00 |
Malc |
21/07/2015 |
A small sum for worthy cause. |
|
£10.00 |
Stephanie Shaw |
21/07/2015 |
|
|
£10.00 |
Ronnie Smith |
21/07/2015 |
|
|
£150.00 |
Trevor and Val Stubbins (Bobop and Grandma) |
17/07/2015 |
Rohan was a wonderful, unselfish and caring young man. He would be so pleased to be helping other children. |
|
£10.00 |
James Trueman |
17/07/2015 |
|
|
£10.00 |
Carol |
15/07/2015 |
x |
|
£20.00 |
Zoe |
15/07/2015 |
Rohan will always live with us and be remembered xx |
|
£20.00 |
Jenny Bradford |
15/07/2015 |
|
|
£50.00 |
Karen, Jon, Sam & Ben |
15/07/2015 |
For Rohan always in our hearts and thoughts xx |
|
£20.00 |
Joy Cox |
15/07/2015 |
What a good idea.Hope you raise awareness for others.Well done xx |
|
£30.00 |
Alison and Neil Spurway |
15/07/2015 |
The story of Rohan, the devotion of his parents and the love of his extended family is an inspiration to all. |
|
£10.00 |
Jane Dashwood |
15/07/2015 |
A great charity to raise money for in memory of your special little boy. x |
|
£20.00 |
Anonymous |
15/07/2015 |
|
|
£10.00 |
Anonymous |
15/07/2015 |
|
|
£20.00 |
Emily & Mark |
15/07/2015 |
A great charity to choose to raise money in memory of your precious Rohan. Xxxx |
|
£20.00 |
Sharon, Allister, Ethan & Keira |
14/07/2015 |
Rohan was an amazing young man who touched the hearts of so many... missed everyday and loved forever xxxx |
|
£100.00 |
Anonymous |
14/07/2015 |