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Duchenne appeal

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Researcher looking through microscope

Searching for a new treatment

Support vital research that could help improve the lives of all children with Duchenne

Tom's story

Tom was just four years old when tests revealed he had Duchenne muscular dystrophy. Nothing could have prepared his parents for the devastating news that this disease would likely rob their son of his future. Now aged 13, Tom is following the heartbreaking progression of Duchenne – he can no longer walk or sit up from lying down and relies on a wheelchair.

Potential new treatments mean everything to families like ours. Too many parents have lost their children to this horrendous condition. It is the thought of those mothers and fathers that makes me appreciate every second with my son.

Rebecca, Tom's mum