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Niemann-Pick appeal

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Researcher in the lab

Our research to fight NPC

Find out more about the research we're funding to help fight this devastating disease.

Matilda and her mum Georgina

Matilda's fight

Matilda was just five years old when she was diagnosed with NPC. It was heartbreaking news for her parents. To know that they'd have to watch this disease progressively rob their amazing little girl of the simplest of tasks like walking, swallowing and talking.

“Helping her to understand this condition has been heartbreaking. She knows that things will get worse, that it will try and take away abilities that she has, but we won’t just sit back and let it happen. We are determined to fight Niemann-Pick C.”

Georgina, Matilda's mum