Fighting a rare disease
Help unlock the best treatments for children fighting NMDAR-antibody encephalitis
NMDAR-antibody encephalitis is a rare brain disease that can have a devastating impact on young lives.
Children can face months in hospital fighting a range of debilitating symptoms including seizures, confusion, memory loss, and loss of speech. Sadly, many children are left with serious difficulties that will affect their long-term quality of life.
That's why we urgently need to raise £10,000 towards a cutting-edge piece of research that could help personalise each child’s treatment. Significantly improving their recovery and reducing the long-term effects of this cruel disease.
100% of your donation will support this research. Plus, your gift will also be doubled by a generous supporter, making your gift go twice as far!
Together we can help fight this devastating disease
Up to £10,000 of donations will be matched by an existing supporter – doubling the impact of your gift!
Fund cutting-edge new research
Learn more about the exciting new study you'll be helping to fund to fight this rare disease.
Beatrice's story
Beatrice was just eight years old when her health deteriorated suddenly and was later diagnosed with NMDAR-antibody encephalitis. For months, she lost the ability to control her movements, talk or understand what was going on around her – and endured many different treatments before doctors started to see improvements.
It’s been a long journey and at times it felt like so little was known about what would happen next and whether Beatrice would fully recover. That’s why Action’s support of Dr Eyre’s research is so important to families like ours. To have known more about what was to come, would have made a huge difference during that worrying time.