Together we can fight XLP
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Rachel and Paul know all too well the heartbreaking consequences XLP has on young lives. Their sons Samuel and James were both diagnosed with the disease and underwent bone marrow transplants to give them the best chance of surviving.
Now five years later, Samuel is doing well but sadly James sustained considerable brain damage. He can walk but not run and struggles to communicate and will sadly need 24/7 care for the rest of his life.