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X-linked lymphoproliferative appeal

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DNA Double Helix

Working towards a cure

Learn more about the research that could help develop a cure for XLP without the need for a bone marrow donor.

James and Samuel with Mum and Dad

Fighting XLP

Rachel and Paul know all too well the heartbreaking consequences XLP has on young lives. Their sons Samuel and James were both diagnosed with the disease and underwent bone marrow transplants to give them the best chance of surviving.

Now five years later, Samuel is doing well but sadly James sustained considerable brain damage. He can walk but not run and struggles to communicate and will sadly need 24/7 care for the rest of his life.

It’s difficult to explain or put into words just how huge a rollercoaster dealing with XLP has been for everyone.

Rachel, Samuel and James' mum