Fighting Duchenne
Transform the lives of children born with Duchenne muscular dystrophy
Duchenne muscular dystrophy is a devastating genetic disease that primarily affects boys.
The disease causes children to suffer a relentless deterioration of their physical abilities, making it difficult to sit, stand or walk. Many children will need to use a wheelchair by their early teens and will eventually become paralysed.
Sadly, the disease can be fatal and, although some treatments are available to help slow its progression, they do not benefit all affected children. That’s why we urgently need your help to raise £12,000 to support much-needed research that could lead to an effective new treatment for ALL children with Duchenne.
transform the lives of children born with Duchenne
Searching for a new treatment
Support vital research that could help improve the lives of all children with Duchenne
Tom's story
Tom was just four years old when tests revealed he had Duchenne muscular dystrophy. Nothing could have prepared his parents for the devastating news that this disease would likely rob their son of his future. Now aged 13, Tom is following the heartbreaking progression of Duchenne – he can no longer walk or sit up from lying down and relies on a wheelchair.
Potential new treatments mean everything to families like ours. Too many parents have lost their children to this horrendous condition. It is the thought of those mothers and fathers that makes me appreciate every second with my son.