Necrotising enterocolitis (NEC)
Elijah was born extremely prematurely at 25 weeks and three days, weighing just 823g and, sadly, lived for just 37 days.
Elijah was born extremely prematurely at 25 weeks and three days, weighing just 823g – less than 2lbs – and, sadly, lived for just 37 days.
At first, Elijah seemed to be doing well, but things changed suddenly when he contracted the devastating bowel infection necrotising enterocolitis (NEC). NEC happens when the lining of a baby’s intestines becomes inflamed and starts to die.
Elijah endured urgent surgery to remove 82cm of his intestines which NEC had destroyed. Sadly, he was left with a condition called short bowel syndrome. He also suffered severe brain damage and Jenny and husband James had to make the heartbreaking decision to move from intensive care to palliative care.
Elijah took part in an Action funded study to develop a new test for NEC so that babies at risk of this terrible disease can be diagnosed and treated sooner. The charity is funding further research into NEC to help save tiny lives.
Determined to support this vital work, Jenny and James set up ‘Team Lightning’ and undertake running events for the charity every year in their precious son’s memory.