You are here:

Elijah's story

More Family Stories

Eva: ataxia

Eva has problems with strength, balance and co-ordination, tires easily and suffers from a type of tremor that becomes more pronounced when she moves.

Kai: primary ciliary dyskinesia (PCD)

Kai suffers from a serious lung disease called PCD. Children with this rare condition have a persistent cough from birth and face a lifetime of recurrent chest infections. They often develop hearing loss and eventually permanent lung damage.