Organisations we work with

Action works with other organisations where this helps move forward important medical research for children.

Our gold standard peer review process is highly regarded and other charities often join us to fund research recommended by Action’s expert Scientific Advisory Panel.

We are working with LifeArc funding 18 research projects to date across the UK into children’s rare diseases, including projects into pyridoxine-dependent epilepsy; a rare severe lung condition in babies; high-risk brain cancer in children; severe childhood epilepsy; rare childhood developmental disorders; rare and incurable childhood brain tumours; Krabbe disease;  face masks for children with facial differences who need breathing support; and a  rare inherited kidney condition.    

We are working in partnership with Borne to tackle premature birth including funding research together to understand how labour starts;  investigate whether a surgical procedure can help reduce the risk of preterm birth after previous emergency caesarean section; and develop a new antimicrobial therapy to help prevent preterm labour in women at high risk. 

We’re working with DEBRA UK to fund together research searching for a new drug treatment for children with a rare skin condition and we’re working together to fund further research in 2024. 

We’ve worked with Cystic Fibrosis Trust to fund five projects including research to develop a new type of gene therapy and are now working together to fund further research into cystic fibrosis. 

We teamed up with the Chartered Society of Physiotherapy Charitable Trust and are jointly funding research to improve movement through brain stimulation.

We’re funding research with The Addenbrooke's Charitable Trust to improve the treatment of children with traumatic brain injury (TBI).

We are working with the British Paediatric Neurology Association (BPNA) to co-fund Research Training Fellowships in childhood neurological conditions including  Fellows researching a rare brain disease and multiple sclerosis. We’re working together to fund a further Research Training Fellow in 2025. 

We’re working with the Masonic Charitable Foundation to fund a Research Training Fellow investigating preschool children with recurrent wheezing.

We are working with Rosetrees Trust to co-fund a Research Training Fellowship in improving the safety and effectiveness of a new treatment for peanut allergy.

We teamed up with Great Ormond Street Hospital Children’s Charity and jointly funded 13 project grants from across the UK. We’ve also worked with Neuroblastoma UK to fund a project to help children's immune systems to fight cancer.

We worked with Cure Kids and Sands to fund research to help prevent stillbirth, with SMA UK to fund research into a potential new treatment for spinal muscular atrophy and with The Brain Tumour Charity to fund research into brain cancer treatments for children.

We funded research together with Newcastle Upon Tyne Hospitals NHS Charity and the Great North Children’s Hospital Foundation into language comprehension in children with cerebral palsy and severe movement problems.

We worked with the Scottish Government Chief Scientist Office (CSO) to fund research in Scotland including  projects to help prevent or treat serious lung infections; understand the genes involved in developmental language disorder; understand vision in children born to mothers taking methadone in pregnancy; and help children who were born with cleft palate to speak clearly.

We, the Niemann-Pick Research Foundation and Niemann-Pick UK together funded a study, together with NPSuisse and Niemann-Pick de Fuenlabrada to test a new drug treatment into Niemann-Pick disease type C.

We previously funded a four year project developing a new, computerised way of interpreting MRI scans of babies’ brains together with the Engineering and Physical Sciences Research Council. We worked with the Medical Research Council (MRC) to fund a Clinical Research Training Fellow. We funded the first major UK scientific study into multiple sclerosis (MS) in children together with the MS Society.