More family stories
Kai suffers from a serious lung disease called PCD. Children with this rare condition have a persistent cough from birth and face a lifetime of recurrent chest infections. They often develop hearing loss and eventually permanent lung damage.
Felix was diagnosed with high risk, stage four neuroblastoma aged just four and tragically lost his life after two years of gruelling treatment.
When little Noah was diagnosed with the rare disease Landau Kleffner syndrome, doctors told his parents Madeka and Ryan, ‘Don’t look it up because it will really scare you’.