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Ioan's story

More Family Stories

Robbie: cleft palate

Shortly after his birth, Robbie was diagnosed with a condition called Pierre Robin Sequence. He had difficulty feeding and breathing due to a cleft soft palate and a small, receding lower jaw.

Sophie: epilepsy

Recalling the time when her daughter Sophie’s seizures first began, mum Anne says: “Sophie first noticed something unusual happening when she was cross country running aged 11.

Tom: cerebral palsy

Tom was diagnosed with quadriplegic cerebral palsy before his first birthday and discovering that their baby son would face a lifetime of disability was heartbreaking for Maria and husband Terry

Eva: ataxia

Eva has problems with strength, balance and co-ordination, tires easily and suffers from a type of tremor that becomes more pronounced when she moves.